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Rasing awareness

Lessons from my daughter

February 29th is Rare Disease Day

In my own way, through writing about our experiences raising Emily, I continue to spread the word about Cri du Chat Syndrome (CdCs)

I do my best to share experiences that are positive, fun and inspiring. I don’t shy away from writing about struggles but I will always respect Emily’s need for privacy on some more personal topics.

Did you know…

Only 1 in approximately 50,000 born will miss that tiny part of their 5th chromosome…. chances of knowing or meeting another child with CdCs are really small.

Emily was diagnosed before facebook, the information available was outdated and scary. It took us 15 years before we met others with Cri du Chat Syndrome.

Now with facebook, association and blogs, our reach is far greater and parents find up-to-date information much faster.

That being said, it is essential to increase awareness to promote acceptance…

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About hbhatnagar

I need to fill this up with much better content than I had populated it with earlier. Why I write a blog maybe? I started blogging in 2009 or thereabouts. I was a newly turned atheist and wanted to converse with others of the same persuasion. We're not exactly a big population group in India! It didn't go very well and I sort of lost interest, posting a few things now and then. I got a lot more regular over the last few months and have been posting almost daily since February '15. There were many reasons why I gradually became more regular in posting, but one way or the other, here I am! So this blog has taken shape, being at different points in time my showcase, my comedy club, my art gallery, my book club, my therapist, my close friend, my innermost self....but always my little corner of the world. You are all welcome to visit and I hope you stay awhile! A few points about me because I don't want to lead anyone on(and trust me this does become an issue more often than I'd care to admit). I'm Indian, the brown-skinned variety; if race, ethnicity or skin colour is an issue, you don't have to get to know me any more than what you see on my blog. I'm 40, so if age is an issue, please be informed accordingly. I was a doctor, an ophthalmic surgeon for 10 years before I quit practice.

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